Dementia and Ageing Research Team (DART): projects
Below is a list of research projects at the Dementia and Ageing Research Team (DART).
BMH - Nursing - Ongoing studies
Neighbourhoods and Dementia
Abstract
Neighbourhoods Study:
The key impact and communications objectives are to:
- Ensure that the Neighbourhoods study team’s values and aims are understood and acted upon by all stakeholders
- Build a next generation of research leaders in dementia studies and for people with dementia and their care partners, develop inter-personal networks and wellbeing through the member involvement strategy
- Co-create, test and evaluate a range of neighbourhood-based interventions that reflect the everyday lives of people living with dementia and their carer partners
- Influence and inform the national and international policy agenda on dementia friendly communities
The key messages to communicate are:
- To demonstrate the importance of dementia friendly neighbourhoods and the difference people living with dementia and their care partners make to society
- The share the co-created measures that people living with dementia and their care partners attach to their everyday experience
- To reveal innovative technological advances in dementia studies and in the development of a neighbourhood model of dementia
- To capture the importance of team-working and a shared vision for research practice in dementia studies, informed by people living with dementia and their care partners
Duration of the project
60 months (May 2014-April 2019)
Funding body
Economic and Social Research Council / National Institute for Health Research
Members of the project
| Name | Role |
|---|---|
| Professor John Keady | Principal investigator |
| Miss Linda Welch | Research Secretary |
| Dr Caroline Swarbrick | Co-investigator |
| Professor Neil Pendleton | Co-investigator |
| Professor Alys Young | Co-investigator |
| Dr Siobhan Reilly | Co-investigator |
| Dr Ruth Elvish | Co-investigator |
| Dr David Reeves | Co-investigator |
| Dr Ingrid Hellstrom | Co-investigator |
| Dr Richard Ward | Co-investigator |
| Professor Neil Pendleton | Co-investigator |
| Mr James Schumm | IT Officer |
| Andrew Hall | Collaborator |
| Ms Sarah Campbell | Research assistant |
| Dr Mark Hann | Research assistant |
| Ms Emma Ferguson-Coleman | Research assistant |
| Gindo Tampubolon | Co-investigator |
| Professor Alistair Burns | Co-investigator |
| Professor Linda Davies | Co-investigator |
| Professor Chris Taylor | Co-investigator |
| Professor David Challis | Co-investigator |
| Dr Iracema Leroi | Co-investigator |
| Professor James Nazroo | Co-investigator |
| Professor Lars-Christer Hyden | Co-investigator |
| Mr Simon Burrow | Co-investigator |
External website: Neighbourhoods and Dementia
The Neighbourhoods Study comprises 4 inter-linked work programmes and involves 10 co-investigator organisations, The University of Manchester (lead), Liverpool University, Lancaster University, Salford University, Stirling University, University College London, Greater Manchester West Mental Health NHS Foundation Trust, Pennine Care NHS Foundation Trust, ACE InSight CiC, the British Deaf Association and the Centre for Dementia Research [CEDER; http://www.isv.liu.se/ceder?l=en], Linköping University, Sweden [CEDER is directed by Professor Lars-Christer Hydén]. There are 27 named co-investigators involved in the Neighbourhoods Study with over 10 partner organisations. There are three full-time programme-linked ESRC PhD studentships, two situated in the north west of England and one in Scotland (starting September 2015), and 2 PhD studentships offered through CEDER (started September 2014). The Neighbourhoods Study has health economics and statistician support and also employs a one-day a week Research Fellow/Well-Being Practitioner [Dr Ruth Elvish, clinical psychologist] to provide assistance and support to people living with dementia, care partners and academic/research staff involved in the programme.
A neighbourhood model framed around people, spaces and places underpins the Neighbourhoods Study and the five year research study has eight inter-linked work programmes. Work programme 1 is about the active involvement of people living with dementia and their care partners [the Member Involvement Strategy]. Work programme 2 uses representative longitudinal study data, such as the English Longitudinal Study on Ageing (also known as ELSA), to determine neighbourhood characteristics associated with good/poor cognitive ageing. This will help us to identify profiles of risk at a neighbourhood level. Work programme 3 establishes an agreed standardised set of outcome measures, generating a core outcome set for research involving people with dementia and care partners. Work programme 4 adopts participatory approaches to understand the ways in which neighbourhoods support the wellbeing and everyday lives of people with dementia and their care partners. Work programme 5 is about developing the evidence base for evaluating dementia training in NHS hospitals. Work programme 6 is about the piloting and development of a couple-orientated self-management course - provided at home - to help sustain and enrich everyday life. Work programme 7 is about the development and testing of a linguistically appropriate and culturally sensitive personalised digitised life story tool for use by and with Deaf sign language users with dementia. Work programme 8 comprises the health and wellbeing strategy for staff and participating members. The duration of the research study allows these work programme dynamics and relationships to be explored over time.
Outputs
- Keady, J., & The Neighbourhoods Study Team (2014). Neighbourhoods and Dementia: An Introduction to the Study. The Journal of Dementia Care, 22(6), 12-13. . Publication link: ad1b9c1f-7c3e-4805-ba39-d7bd7079697d
- Keady, J., Campbell, S., Barnes, H., Ward, R., Li, X., Swarbrick, C., ... Elvish, R. (2012). Neighbourhoods and dementia in the health and social care context: A realist review of the literature and implications for UK policy development. Reviews in Clinical Gerontology, 22(2), 150-163. DOI: 10.1017/S0959259811000268. Publication link: 9a6393cb-08bd-49b4-b9c1-a54f8b6e4503